International Euro Ewing Registry

• Conditions: MedDRA - 10015560MedDRA - 10015759MedDRA - 10057846 (Primitiver neuroextodermaler Tumor); C40; C41; Malignant neoplasm of bone and articular cartilage of limbs; Malignant neoplasm of bone and articular cartilage of other and unspecified sites

• Registration Number: DRKS00023469
• Lead Sponsor: niversitätsklinikum Essen, Zentrum für Kinder- und Jugendmedizin, Klinik für Kinderheilkunde III, Ewing-Studienzentrale

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2020-11-06
• Study Completion: 2023-04-06
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting stopped after recruiting started
• Sex: All
• Target Recruitment: 226

Inclusion Criteria

Primary diagnosed and histologically confirmed, localised or metastatic Ewing sarcoma or Ewing-like sarcoma or adult DSRCT of bone or soft tissue.

Exclusion Criteria

No Informed Consent

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Major Objectives:<br>- To collect long-term follow-up data that exceeds current clinical studies<br>- To collect data from patients receiving standard treatment when no current clinical study is available<br>- To collect data from patients not fulfilling other clinical study criteria<br>- To collect biomaterial for ancillary studies<br>

Secondary Outcome Measures

Name	Time	Method
not applicable, registry