Textual Analysis of Narratives Produced by Adolescent Oncology Patients: A Research Project
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 500
- 试验地点
- 1
- 主要终点
- Thematic Analysis of Patient Narratives
研究概览
简要总结
This research project builds on a long-standing tradition within our Institute of documenting "free thoughts" and personal reflections shared by adolescent oncology patients and their families. These narratives, collected through "logbooks" in ward rooms and during dedicated events-including those focused on the COVID-19 pandemic-represent a profound tool for patients to reclaim their identity beyond their diagnosis.
The aim is to stimulate and collect patient narratives to better understand their emotional and lived experiences. By analyzing these spontaneous writings, the study aims to improve clinical practice, enhance the patient-provider relationship, and optimize the overall healthcare organization.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Other
入排标准
- 年龄范围
- 13 Years 至 25 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •adolescents and young adults treated at the Area giovani CRO from 2021
- •willing to participate at the study
排除标准
- •absence of informed consent
结局指标
主要结局
Thematic Analysis of Patient Narratives
时间窗: 10 years
Evaluation of narrative content to identify key themes, semantic fields (values, emotions, perceptions), and prevailing cultural orientations. The analysis aims to characterize the patient's experience and identify potential unresolved conflicts related to the oncological journey, as defined by Pinardi and De Angelis (2006) methodology.
Structural Analysis of the text
时间窗: 10 years
To identify and examine the core elements of the text, including the narrator, characters, spatial and temporal settings, and point of view.
Stylistic Analysis
时间窗: 10 years
Evaluation of the linguistic register and the identification of key rhetorical figures used to convey personal meaning
Processual Analysis
时间窗: 10 years
ased on the "Processual Analysis" framework (Turchi, 2007), this phase describes the architecture of the text starting from the discursive processes (repertoires) employed by the narrators. The goal is to identify how specific uses of language generate and define the participants' configurations of reality. All the analyses are qualitative
次要结局
未报告次要终点