Patients to People: Examining the Effects of Early Implementation of Narrative Medicine Techniques on Patient Centered Attitudes in Medical Students. A Qualitative Study
试验速览
- 阶段
- 不适用
- 状态
- 撤回
- 试验地点
- 1
- 主要终点
- Patient provider orientation scale score (PPOS)
研究概览
简要总结
A qualitative study assessing the impact of early narrative medicine practice on Medical Honors Program (MHP) students' attitudes regarding patient-centered interactions, through interviewing patients with chronic or life-limiting illnesses to obtain their illness stories.
MHP students will develop a patient narrative for the patients interviewed. These narratives will be edited by the patient, and, with the permission of the patients, may be published as a collection of stories.
详细描述
Teach MHP Students about obtaining the illness story and narrative medicine. This will be done during the curriculum of the Medical Humanities class in the fall of 2016.
Recruit patients on units and floors in Shands University of Florida (UF) Health that may potentially have patients that will be good candidates for enrollment in the patient narratives. These may include pediatric hematology and oncology patients, adult hematology and oncology patients, patients with diabetes, organ transplant patients, cystic fibrosis patients, and rheumatologic disorder patients. Investigators will communicate with child life/social workers, as well as faculty medical providers on these inpatient services to help identify appropriate patients for referral and recruitment. These faculty members will obtain authorization from the patient for the investigators to approach the patient regarding recruitment.
Once a patient has been identified, a co-investigator will introduce the project to the patient, review examples of the types of questions to be asked by the MHP student, provide opportunity for questions, obtain informed consent, and provide them with the patient-practitioner orientation scale (PPOS) for completion.
A MHP student will meet with the co-investigator, fill out the PPOS, and then interview the patient. The co-investigator will be present for the interview, but the investigator would like the MHP student to conduct the interview. The interview will be voice recorded with encryption for later transcription.
Following the interview, a co-investigator will lead a discussion to determine patient and student observations/opinions about such conversations. The co-investigator will address differences in PPOS responses from patient vs student, without specifically revealing the personal answers of each, and allow for discussion of how scales can be aligned to better the patient-physician relationship. This discussion will be voice recorded for transcription and qualitative analysis by the investigators
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 8 Years 至 100 Years（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Patient inclusion criteria:
- •Patient of Shands UF Health or Shands Children's hospital
- •Children must be at least 8 years old
- •Patients diagnosed with chronic or potentially life-limiting illnesses
- •Patients must be English speaking
- •Student Inclusion criteria
- •UF students enrolled in the Medical Honors Program
- •Medical Honors students must be up to date on HIPAA training and Confidentiality statement agreement
- •Students must take the Medical Humanities course
- •UF college of medicine students
排除标准
- •Patient exclusion criteria:
- •Anyone that the medical social worker or Child life specialist feels would be unwilling or unable to participate in the study
- •Patients who at the time of interview are unfit to communicate (ex. Ventilated, comatose)
- •Patients less than eight years old
- •Patients that do not speak English
- •Student exclusion criteria:
- •Students not enrolled in the UF College of Medicine
- •Students not enrolled in the Medical Humanities course
结局指标
主要结局
Patient provider orientation scale score (PPOS)
时间窗: baseline
The PPOS is an 18 item questionnaire developed to evaluate patient centered care. The items are rated on a 6 point Likert-type scale. It has two separate parts, sharing and caring, that can be either summed or divided for scoring purposes. Higher scores indicate more patient centeredness.
次要结局
- Patient provider orientation scale- "Sharing" portion(baseline)
- Patient provider orientation scale- "Caring" portion(baseline)
- Medical honors students focus group(following completion of all MHP/Patient interviews, up to 4 months)
- Patient and Student post-interview discussion(immediately post-interview, up to 1 day)