Multiple Hereditary Exostosis and its daily hassles

Completed

• Conditions: benign bonetumour; 10028396; Multiple Osteochondromas; 10040776

• Registration Number: NL-OMON44220
• Lead Sponsor: Onze Lieve Vrouwe Gasthuis

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 15 April 2024

Recruitment & Eligibility

• Status: Completed
• Sex: Not specified
• Target Recruitment: 150

Inclusion Criteria

Individuals with multiple hereditary exostosis (MHE).
Individuals with MHE between 4 untill 17 years old.

Exclusion Criteria

Individuals under the age of 4 years or older than 17 years.
Individuals who do not speak Dutch

Study & Design

• Study Type: Observational non invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>Quality of live scores, painscores, fatiguescores, activitylevels, mental<br /><br>well-being scores. </p><br>

Secondary Outcome Measures

Name	Time	Method
<p>Factors that are associated with the primary study parameters, such as: age,<br /><br>seks, age of first surgery, amount of surgeries, education level, marital<br /><br>status, employment status. </p><br>