PFAPA syndrome in childhood: factors related to the number of PFAPA-associated fever days.

• Conditions: ORPHA:42642; ICD-11: DA01.10; UMLS: C2938935, syndrome of periodic fever, aphthous stomatitis, pharyngitis, and adenitis.; M35.8; Other specified systemic involvement of connective tissue

• Registration Number: DRKS00032170
• Lead Sponsor: Gerhard-Kienle-Lehrstuhl, Fakultät für Gesundheit, Private Universität Witten/Herdecke gGmbH

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2023-07-03
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Pending
• Sex: All
• Target Recruitment: 500

Inclusion Criteria

Parents of children with PFAPA syndrome
Filling out an electronic questionnaire

Exclusion Criteria

n/a

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
A one-time parent-based survey will regression-analyze the distribution of the number of PFAPA-associated fever days and possible factors influencing the number.

Secondary Outcome Measures

Name	Time	Method
Age at PFAPA diagnosis<br>Time until PFAPA diagnosis<br>Intervals between PFAPA episodes<br>Febrile convulsions<br>Parental impression of psychological distress <br>Examination booklet remarks<br>Distribution of symptoms<br>Effect of warming or cooling measures