Detection of pain-associated, rare diseases by pain-drawing (Ehlers-Danlos-Syndrom, Guillain-Barré-Syndrom)

Recruiting

• Conditions: Q79.6; G61.0; Ehlers-Danlos syndrome; Guillain-Barré syndrome

• Registration Number: DRKS00014777
• Lead Sponsor: Zentrum für seltene Erkrankungen Bonn

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2018-06-01
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 60

Inclusion Criteria

assured diagnosis (Ehlers-Danlos-Syndrom, Guillain-Barré-Syndrom), signed informed consent

Exclusion Criteria

age under 18, no informed consent, diagnosis not assured

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
o outcome defined. The aim of the study is to identify repetitive patterns in pain-drawings of patients with rare diseases and thus investigate whether the detection of rare diseases can be accelerated by pain-drawing. The minimum number of participants is 30 / disease.

Secondary Outcome Measures

Name	Time	Method
no outcome defined