Quality of life of patients with multi-organ autoimmune disease and its relationship to patient-centred care - Main study
Recruiting
- Conditions
- Genetic multi-organ autoimmune diseases
- Registration Number
- DRKS00033609
- Lead Sponsor
- Centrum für Chronische Immundefizienz (CCI)
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 300
Inclusion Criteria
Multi-organ autoimmune disease
-Sufficient knowledge of the German language to answer questionnaires
Exclusion Criteria
-No sufficient knowledge of German
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Since the focus of the planned study is not an intervention evaluation, but rather on questionnaire development and exploratory research into patient preferences, quality of life and health status of patients with multi-organ autoimmune diseases, no primary and secondary outcomes are defined. <br>Relevant outcome measures are listed below: disease-specific health status, health-related quality of life, treatment preferences and fulfillment of these preferences.
- Secondary Outcome Measures
Name Time Method Please see above