etwork for Early Onset Cystic Kidney Diseases

Recruiting

• Conditions: Q61.1; Q61.3; Q61.8; Q61.9; Q87.5; Q87.8; Q77.2; Q77.6; Q77.9; Polycystic kidney, autosomal recessive

• Registration Number: DRKS00011003
• Lead Sponsor: niversitätsklinikum Münster, Klinik für Kinder-und Jugendmedizin, Allgemeine Pädiatrie, Leiter Pädiatrische Nephrologie, Stellvertretender Direktor Allgemeine Pädiatrie

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2016-09-06
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 500

Inclusion Criteria

all patients with the above ICD-10 codes

Exclusion Criteria

all patients presenting other diseases than the ones presented above

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
The primary objective of the multidisciplinary network NEOCYST is to improve the life of patients and their families affected by hereditary cystic kidney diseases by increasing our knowledge of the epidemiology, genetics, molecular pathophysiology and long-term outcomes of pediatric cystic kidney disease with and without extrarenal manifestations.<br>

Secondary Outcome Measures

Name	Time	Method
not applicable