Evaluation of the physical resilience and change of airways in patients with cystic fibrosis after starting with a new CFTR-modulator therapy
- Conditions
- E84J33Cystic fibrosisNasal polyp
- Registration Number
- DRKS00025839
- Lead Sponsor
- Mukoviszidose AmbulanzKlinik für Kinder und JugendmedizinUniversitätsklinikum Ulm
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- All
- Target Recruitment
- 80
Inclusion Criteria
cystic fibrosis patient registered in our ambulance
Exclusion Criteria
no cystic fibrosis diagnose, not registered in our ambulance
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method difference of SNOT-22 - total score before start of a new cftr modulator and after 6 month taking the new modulator<br><br>the score before start will be collected in retrospect at the same visit in our outpatient clinic while collecting the score for after the therapie
- Secondary Outcome Measures
Name Time Method FEV1, weight, sweat chloride concentration, sports activity time