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The PRISM-Social Needs (PRISM-SN) Intervention for Adolescents and Young Adults With Cancer

Not Applicable
Recruiting
Conditions
Cancer
Psychosocial Functioning
Coping Skills
Social Functioning
Interventions
Behavioral: Promoting Resilience in Stress Management - Social Needs (PRISM-SN)
Registration Number
NCT06242964
Lead Sponsor
Seattle Children's Hospital
Brief Summary

The goal of this study is to establish feasibility, acceptability, and proof-of-concept of an psychosocial intervention adapted to address social health needs of adolescents and young adults (AYAs) newly diagnosed with cancer. The aims of this study are to:

1. Determine if the Promoting Resilience in Stress Management - Social Needs (PRISM-SN) adapted intervention is feasible and acceptable, defined via program uptake and retention and patient-reported feedback.

2. Explore whether PRISM-SN improves social outcomes at 12-week follow-up compared to usual care.

Participants will be randomized to receive usual psychosocial care or the PRISM-SN program. Participants on both arms will complete patient-reported outcome surveys at enrollment and 12-weeks later. Researchers will compare participants who received the PRISM-SN program to those who received usual care to see if the program improves psychosocial outcomes.

Detailed Description

In this randomized controlled trial, AYAs newly diagnosed with cancer will be recruited from two sites and randomly assigned to receive usual care alone or usual care with the Promoting Resilience in Stress Management - Social Needs (PRISM-SN) adapted program. PRISM-SN is a skill-based behavioral program that includes 4 core modules plus a newly developed social health module. Participants on both arms with complete a standardized patient-reported outcome survey assessing aspects of social and psychological functioning at enrollment and 12-week follow-up.

Recruitment & Eligibility

Status
RECRUITING
Sex
All
Target Recruitment
100
Inclusion Criteria
  • Aged 12-25 years
  • Diagnosed with new malignancy treated with chemotherapy and/or radiation <6-months
  • Able to speak in the English language
  • Able to read in the English language
  • Cognitively able to participate in intervention sessions and complete surveys
Exclusion Criteria
  • Aged <12 or >25 years
  • Diagnosed with recurrent malignancy
  • Diagnosed with new malignancy >6 months
  • Not receiving chemotherapy and/or radiation
  • Not able to speak in the English language
  • Not able to read in the English language
  • Not cognitively able to participate in intervention session or complete surveys

Study & Design

Study Type
INTERVENTIONAL
Study Design
PARALLEL
Arm && Interventions
GroupInterventionDescription
PRISM-SN InterventionPromoting Resilience in Stress Management - Social Needs (PRISM-SN)Skill-based psychosocial program
Primary Outcome Measures
NameTimeMethod
Cancer Behavior Inventory - Social Relationship Coping Efficacy (CBI-SCRE) Measure12-weeks

The Cancer Behavior Inventory - Social Relationship Coping Efficacy measure assesses one's confidence to engage in behaviors that maintain or enhance close social relationships in the context of illness. Ten items are rated 1-10; items are summed, with higher scores reflecting higher social relationship coping efficacy.

Secondary Outcome Measures
NameTimeMethod
Patient Reported Outcome Measurement Information System (PROMIS) Pediatric Profile-25 and Family Relationships Subscale12-weeks

The Pediatric Profile-25 (v2.0) includes 25 items assessing health status across 7 domains: physical function mobility, anxiety, depressive symptoms, fatigue, peer relationships, pain interference, and pain intensity. For this study, we will also include the 4-items pediatric family relationships short-form subscale (v1.0). All items are scored on a 5-point Likert scale except for a single pain intensity item scored on a 10-point scale; higher scores indicate more of each domain. Total raw scores are converted to standardized T-scores with a population mean of 50 and a standard deviation of 10.

Connor-Davidson Resilience Scale (CS-RISC)12-weeks

The Connor-Davidson Resilience Scale (CS-RISC) is a reliable and widely used instrument assessing self-perceived resilience. Scores range from 0-40, with higher scores indicating higher self-perceived resilience.

Hospital Anxiety and Depression Scale (HADS)12-weeks

The Hospital Anxiety and Depression Scale (HADS) assesses mixed affective symptoms in patients with serious illness. The scale includes 7 questions for anxiety and 7 for depression. Each is scored from 0-3 for a total range of 0-21 for each subscale. Clinically relevant symptoms are defined as scores of 8 or higher for both anxiety and depression.

Snyder Hope Scale12-weeks

The Snyder Hope Scale contains 8 hope items plus 4 filler questions, and measures the overall perception that one's goals can be met. Each item is scored on an 8-point Likert scale; higher scores imply greater levels of hopeful thought patterns.

Multidimensional Scale of Perceived Social Support (MSPSS)12-weeks

The Multidimensional Scale of Perceived Social Support (MSPSS) is a brief tool designed to measure support from family, friends, and a significant other. It includes 12 items with 4 per subscale. Items are rated on a 7-point Likert scale from 1 (very strongly disagree) to 7 (very strongly agree). It has been validated in both adolescents and adults. Mean scale scores ranging from 1-2.9 can be considered low support; 3-5 considered moderate support; and 5.1-7 considered high support.

Trial Locations

Locations (1)

Seattle Children's

🇺🇸

Seattle, Washington, United States

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