eeds and problems of patients with a mitochondrial disease in the Netherlands. Open interviews according to the grounded theory approach

• Conditions: mitochondrial disease; energy metabolic disease; 10027424; 10028302; 10024450

• Registration Number: NL-OMON30378
• Lead Sponsor: niversitair Medisch Centrum Sint Radboud

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 18 June 2024

Recruitment & Eligibility

• Status: Pending
• Sex: Not specified
• Target Recruitment: 25

Inclusion Criteria

Patients
1. with a determined mitochondrial disease
2. who are 18 years or older
3. who are able to to give informed consent
4. Living in the Netherlands and the Dutch language adequate speaking.

Exclusion Criteria

Iedereen die niet voldoet aan de inclusiecriteria.

Study & Design

• Study Type: Observational non invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>Engelse tekst volgt indien onderzoeksvoorstel definitief moet worden voorgelegd<br /><br>aan de METC (in overleg met mevrouw Lilian Damen).</p><br>

Secondary Outcome Measures

Name	Time	Method
<p>Engelse tekst volgt indien onderzoeksvoorstel definitief moet worden voorgelegd<br /><br>aan de METC (in overleg met mevrouw Lilian Damen).</p><br>